Resources

MDFF is not your only option for assistance or support; You may wish to consider these additional resources:

Muscular Dystrophy Association – Indianapolis
9100 Purdue Road # 203
IndianapolisIN 46268
317-824-4800

Servants At Work (SAWS)
A volunteer ministry providing wheelchair ramps for qualified disabled and aging individuals.
P.O. Box 40716, Indianapolis, IN  46240
317-844-7664

Families United for Support and Encouragement (FUSE)
1133 W. Main, Suite E,  Greenfield, IN  46140
317-462-9064

Noble of Indiana
Expanding opportunities and the qualify of life for those and their families with disabilities.
7701 E. 21st Street, Indianapolis, IN  46219
317-375-4256

About Special Kids (ASK)
Provides information and support to families of children with special needs.
7172 Graham Road, #100,  Indianapolis, IN  46250
317-257-8683

CICOA
A non-profit agency providing counseling, support and information to the aging and those with disabilities who wish to remain at home.
800-432-2422

Central Indiana Accessibility Partnership Project
A source for those in central Indiana to receive a grant for home modifications.  Serving Marion and surrounding counties.
317-664-0673

First Hand Foundation
A non-profit organization assisting children with health related needs.
2800 Rockcreek Parkway,  Kansas City, MO  64117
(816) 201-1569

Family Voices of Indiana
Providing information, education and support to families of children with special needs.
445 N. Pennsylvania, #941
Indianapolis, IN  46204
317-944-8982

Parent Project Muscular Dystrophy
Fights to end Duchenne by accelerating research, raising our voices to impact policy, demanding optimal care for every single family & striving to ensure access to approved therapies.
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
1-800-714-5437 / info@parentprojectmd.org

Easterseals Crossroads
Taking on disability together.
4740 Kingsway Dr.
Indianapolis, IN 46205
317-466-1000

accessABILITY
Provides persons with disabilities the tools to set and accomplish their own goals.
9105 East 56th St.  Suite 308
Indianapolis, IN 46216
317-926-1660

Assisted Living at www.assistedliving.org
Community organization prioritizing help for disabled and the elderly to enjoy their healthy years and age gracefully, Creates and publishes comprehensive, unbiased, free web-based resources. Featured on the Parkinson’s Foundation, US Department of Health and Human Services – Health Finder, Global Healthspan Policy Institute, and many governmental agencies

CLINICAL TOOLS TRIAL FINDER


What are Clinical Trials?  Clinical trials are research studies conducted to determine whether a medical strategy, treatment or device is safe and effective for use in humans. Trials are experiments in which novel drugs or treatments are tested in people, sometimes for the very first time. Clinical trials are very different from routine medical care (including prescribed use of FDA-approved drugs), because doctors and researchers don’t know exactly how the treatment or device will affect people.

Some clinical studies are not used to test a treatment or device but instead aim to observe patients in order to better understand a disease. These “observational” studies may be used to determine how to detect or diagnose a disease, or to optimize testing procedures for future trials.