MDFF is not your only option for assistance or support; You may wish to consider these additional resources:
Parent Project Muscular Dystrophy
Fights to end Duchenne by accelerating research, raising our voices to impact policy, demanding optimal care for every single family & striving to ensure access to approved therapies.
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
1-800-714-5437 / firstname.lastname@example.org
Assisted Living at www.assistedliving.org
Community organization prioritizing help for disabled and the elderly to enjoy their healthy years and age gracefully, Creates and publishes comprehensive, unbiased, free web-based resources. Featured on the Parkinson’s Foundation, US Department of Health and Human Services – Health Finder, Global Healthspan Policy Institute, and many governmental agencies
CLINICAL TOOLS TRIAL FINDER
What are Clinical Trials? Clinical trials are research studies conducted to determine whether a medical strategy, treatment or device is safe and effective for use in humans. Trials are experiments in which novel drugs or treatments are tested in people, sometimes for the very first time. Clinical trials are very different from routine medical care (including prescribed use of FDA-approved drugs), because doctors and researchers don’t know exactly how the treatment or device will affect people.
Some clinical studies are not used to test a treatment or device but instead aim to observe patients in order to better understand a disease. These “observational” studies may be used to determine how to detect or diagnose a disease, or to optimize testing procedures for future trials.