Jill Millington was diagnosed with MD as a young adult. She and her family are very active in annual fundraising. Below, Jill shares her road to diagnosis and how she fights back:
I have limb girdle muscular dystrophy 2a. Limb girdle muscular dystrophy is a muscle wasting disease caused by a defective or missing gene. 2a is my subtype. There are over 30 subtypes of limb girdle muscular dystrophy.
I had a fairly normal childhood. I was always the last one in the race or the one who couldn’t jump, but it never really bothered me. Then, in my early twenties, I couldn’t walk up stairs or curbs. My mom got scared and took me to the doctor. That is when I got my diagnosis.
I didn’t really start to feel the worst of the disease until a few years ago. I had a major surgery and my muscular dystrophy made it harder for me to recover. It took me a couple months when it should have taken only a couple WEEKS!
I fight this disease every day, though, so, I can’t and don’t let it control my life. My family and I raise funds for muscular dystrophy. That is how we fight back! We do this to help send kids to a summer camp that they look forward to every year! Fund raising also provides care clinics and pays for research for a cure for muscular dystrophy!
September 30, 2019, is Limb Girdle Muscular Dystrophy Awareness Day in Indiana, because I asked the governor for a proclamation! There are several other states that have done this as well. One day, we hope this will be true in all 50 United States!