Category Archives: Events

Andrew “Sparky” Seever Scholarship

Andrew Seever served on the MDFF board for 3 years and lived nearly 28 years with Duchennes MD, before passing away on Labor Day 2017.

His family asked for contributions to be made in lieu of flowers to MDFF and a large number of people responded generously.

Our desire is to keep Andrew’s memory alive in a way that honors him and his family. Beginning in 2018, MDFF will be awarding a $2,000 Andrew M. “Sparky” Seever college scholarship to a Hoosier with MD who aspires to attend an accredited college or university.

Look for details about the application process on our website and in a direct mailing in February 2018!  Please pass on this opportunity to other MD families that may be interested!


MDFF Directory Registration

In an effort to help MD families connect with other MD patients and caregivers living with the same disease and/or living in the same geographic area, we are planning on publishing an MDFF Directory.  You may opt in to be included in the directory and choose how much information you want to share!

Our goal is to mail it to our MDfamilies with other MDFF news and Scholarship Opportunities in February.

Register HERE to be included in the Director!

NEXT Annual Holiday Party | December 1, 2019

The 2018 Party was a blast with 298 people attending, getting gifts, winning prizes, and joining in an array of activities!  The Holiday Party is a huge event that has activities for kids, teens, adults and special things for our heroic caregivers.  Gifts and prizes are flowing for everyone!  You can check out more of our Holiday Party Photos on our Facebook Page Photo Album!

2019 Party will be Sunday, December 1st

For several decades, the Indianapolis Fire Department (IFD) has partnered with MDFF in hosting the annual Holiday Party for MD families.   With the help of 44 IFD Stations, Battalion Chief Dudley Taylor coordinates the purchase of gifts for every MD patient who attends the party.

The IFD believes in giving back to the community it serves 24/7. “Our family serving your family” is not just a motto but a 150 year core value that extends beyond the firehouse. We are thankful for the opportunity to bring smiles to those in need and not just in times of crisis.

2017 Bowling Extravaganza

We had over 130 people come out to bowl, host and celebrate at the 2017 Bowling Extravaganza!  Thank you to every that came out and/or donated to support the mission of MDFF and help improve the quality life of families living with the daily struggles of Muscular Dystrophy.  
It was a special day handing over the keys of a wheelchair-accessible van to the Debow-Miller family in our 2nd year of our Van-A-Year for 5 Years Program!    
If you are interested in helping us get a jump start on raising funds for the 2018 van, consider one of the following:
  1. Make a donation to Van-A-Year here.
  2. Be a corporate sponsor!  To find out more about publicity and exposure for corporate donors, email!


Thank you to all our 2017 Corporate Sponsors:

We are grateful for our partnership with the 2017 Corporate Sponsors.  These companies support the vision and the work of Muscular Dystrophy Family Foundation and have provided generous financial support that enable us to continue to help improve the quality of life of families living with Muscular Dystrophy.  Thank you to all our Corporate Sponsors!

Tendercare Home Health Services, the Title Sponsor for the 2017 Bowling Extravaganza, provides personalized in-home care delivered by experienced, competent, and supportive nursing professionals, skilled therapists, and caring home health aides. They provide only the best in pediatric and adult home care, ensuring that every person is treated with the utmost respect so that they can live the best life possible.

Dauby O’Connor & Zaleski, LLC (DOZ) was established in 1987 to provide accounting and auditing, tax and consulting services to investors, sponsors, owners, developers and manager of affordable housing communities and related entities.  In addition, DOZ frequently works with not-for-profit entities engaged in various community development endeavors.  The Foundation seeks out the needs of community with the help of DOZ employees.  Their mission is to GIVE BACK and MAKE A DIFFERENCE.

Protiviti is a global consulting firm that delivers deep expertise, objective insights, a tailored approach and unparalleled collaboration through consulting solutions in finance, technology, operations, data, analytics, governance, risk and internal audit to clients via our network of more than 70 offices in over 20 countries.

Our mission is “The right chair and the best care.”  We build the right chairs for people with severe physical challenges. To get it right, we must continually adhere to a spider web of ever-changing state and federal laws, as well as insurance regulations. Thanks to our talented hardworking team of people, we’re able to accomplish our mission—one wheelchair at a time.  AccessNSM, a division of National Seating and Mobility, has a full line of accessibility products.  We keep you moving through daily life by helping you bathe, cook, climb stairs, open doors and get in and out of vehicles. We believe you deserve full access to your home, and everywhere else for that matter.

Our Foundation Sponsors are companies that support efforts to improve the lives in the communities they serve, especially of those that have significant unmet basic needs like the Muscular Dystrophy Community.   Support our Corporate Sponsors, as they support our MD Families!

Walking For Dreams | May 20, 2018 @ 2pm

Thank you to the 2017 Walkers who came out and walked with us and all the donors who gave to help MD families!

The 2018 walk is May 20th!  Bring your family and even your pet and join us at Walking for Dreams 5K Family and Pet Walk and raise funds for families with Muscular Dystrophy!  The walk starts and ends at the Canal at Buggs Temple.

You can Register as an individual, a family or even start a team and select Muscular Dystrophy Family Foundation when you register! This is a great opportunity for a group of kids, teens or adults to engage in a healthy activity by walking for those who have suffered the rare disease of MD and have to live with declining mobility.  Something we all take for granted.

NCAA Tourney Bracket Contest

NCAA Basketball Bracket Winner & Big Thanks!

Nancy Polley picked the Tar Heels to win the NCAA tournament and won the bracket with 126pts to bring home the Golden Ball Trophy! She barely beat out Amy Ring who came in a close second with 124 pts.

Thank you to everyone who entered a bracket and most importantly made a donation that will go to help MD families improve independence and mobility in their daily lives!

 2017 Winner Nancy Polley accepting the Golden Ball Trophy!