All posts by Robin Lee

Bowling Extravaganza | September 10, 2017 1-3:30pm

Tie on your bowling shoes and join us this year!  Meet some MD families who have benefited from your donations to improve their quality of life and enjoy an afternoon of bowling and fun!  We awarded a wheelchair accessible van to the Hodge family last September and we will be awarding a 2nd van to another MD family this year at our 2017  Bowling Extravaganza!!
  1.  Sign up as either a 4 person  team or individually and we’ll pair you up on a team ! The $40 registration fee includes two games of bowling, shoes, food and an opportunity to win door prizes!
  2.  Be a corporate sponsor!  To find out more about publicity and exposure for corporate donors, email!
  3. Make a donation to Van-A-Year here.

The event will be at Woodland Bowling Center at 3421 E. 96th St in Indianapolis.

Thank you to all our 2016 Corporate Sponsors:

We are grateful for our partnership with the 2016 Corporate Sponsors.  These companies support the vision and the work of Muscular Dystrophy Family Foundation and have provided generous financial support that enable us to continue to help improve the quality of life of families living with Muscular Dystrophy.  Thank you to all our Corporate Sponsors!

Tendercare Home Health Services, the Title Sponsor for the 2016 Bowling Extravaganza, provides personalized in-home care delivered by experienced, competent, and supportive nursing professionals, skilled therapists, and caring home health aides. They provide only the best in pediatric and adult home care, ensuring that every person is treated with the utmost respect so that they can live the best life possible.

Superior Van and Mobility is an industry leader providing state-of-the-art mobility solutions for the consumer and commercial transportation industry. We are a proud member of the National Mobility Equipment Dealers Association (NMEDA) and a participant in NMEDAs Quality Assurance Program (QAP); recognition reserved only for the highest quality mobility dealers in the Nation.

For more than 160 years, we have been committed to providing our clients with great service and powerful financial expertise to help them meet their financial goals. We are proud of our longstanding history of supporting not only our customers but also our communities, employees and shareholders.

With the IKAN Bowler® all POWER WHEELCHAIR USERS can go WHEELCHAIR BOWLING, including people with Cerebral Palsy, Muscular Dystrophy, Spina Bifida, Spinal Cord Injuries (all levels of SCI, including Quadriplegia), Amyotrophic Lateral Sclerosis (ALS/Lou Gehrig’s disease), Multiple Sclerosis and other reasons for power wheelchair use…

Citizens State Bank is “Where Hometown Banking Takes Flight.”  Citizens State Bank is a fourth generation family owned bank where there are loan officers in every branch, helpful human beings answer the phones, the community is valued, and decisions are made close to you.

Citizens State Bank is at home here – just like you!

Annual Holiday Party

2017 Holiday Party will be held December 3, 2017!!

For over 67 years, the Indianapolis Fire Department has partnered with the Muscular Dystrophy Family Foundation in hosting an annual Holiday Party for MDFF children and their families. The 2016 party was packed with fun and surprise visitors that included Colts Cheerleaders, Singers Ryan & Lauren Ahlwardt, Mascots – Nitro (Indy Fuel) and Rowdie (Indy Indians). Children also got to enjoy a Magic Show, Balloon Animals, Pets and Paws Therapy Dogs and a visit from Santa. A great party and time for these children to just enjoy being kids with other MD kids!

Under the direction of Battalion Chief Dudley Taylor each of the 44 IFD Stations collects money from the firefighters housed there and donates it to purchase a gift for each child that attends the annual holiday party. In recent years, the party has generous financial and volunteer support from Dauby O’Connor & Zaleski LLC CPA firm who is able to fund the food and activities!

The Indianapolis Fire Department believes in giving back to the community it serves 24/7. “Our family serving your family” is not just a motto but a 150 year core value that extends beyond the firehouse. We are thankful for the opportunity to bring smiles to those in need and not just in times of crisis.

Continue reading Annual Holiday Party

Walking For Dreams | May 20, 2018 @ 2pm

Thank you to the 2017 Walkers who came out and walked with us and all the donors who gave to help MD families!

The 2018 walk is May 20th!  Bring your family and even your pet and join us at Walking for Dreams 5K Family and Pet Walk and raise funds for families with Muscular Dystrophy!  The walk starts and ends at the Canal at Buggs Temple.

You can Register as an individual, a family or even start a team and select Muscular Dystrophy Family Foundation when you register! This is a great opportunity for a group of kids, teens or adults to engage in a healthy activity by walking for those who have suffered the rare disease of MD and have to live with declining mobility.  Something we all take for granted.

NCAA Tourney Bracket Contest

NCAA Basketball Bracket Winner & Big Thanks!

Nancy Polley picked the Tar Heels to win the NCAA tournament and won the bracket with 126pts to bring home the Golden Ball Trophy! She barely beat out Amy Ring who came in a close second with 124 pts.

Thank you to everyone who entered a bracket and most importantly made a donation that will go to help MD families improve independence and mobility in their daily lives!

 2017 Winner Nancy Polley accepting the Golden Ball Trophy!

Your Help and Support Makes A Difference!


At age 26 and while working as a carpenter, I was diagnosed with a form of MD- Charcot Marie Tooth. My daughter also has been diagnosed with Muscular Dystrophy. MDFF paid for the installation of support rails in our home and a new support arm on the vehicle so that we may now transport my wheelchair instead of the scooter.
The additional freedom, independence and comfort is wonderful as I am able to get around much better in my wheelchair than the scooter. My daughter is able to help load my chair with much greater ease and we know the wheelchair is being safely transported.

Our home ramp a reality


“Words cannot express our appreciation for the MDFF in helping to make our home ramp a reality. The kids are so happy, and it has made a huge difference in the mobility and the independence of our family. Thank you for all you do to help the needs of the families affected by Muscular Dystrophy.”

Your Financial Support Means So Much!

As a single mother of 3 teens with Muscular Dystrophy atrophy, independence is important. MDFF made it possible for us to have an automatic door opener for the main entrance to our home, and each of the kids has an opener on their wheelchair.
My plate is full caring for my children. I enjoy seeing my children have greater independence, and it is one less responsibility for me. I remember the first day the school bus arrived after the door was installed. My daughter had such joy and excitement as she realized for the first time, she could get to the bus entirely on her own.